WElcome to our library
It's still a work in progress, but we are excited to finally get this going. We hope this will be a information hub. Be sure to pick the category you need. It will sort all the files.
Our thanks to the Adrenal Insufficiency Coalition, who found and shared many of the links you'll find in this library with AIU. We also want to thank our members and health care providers have contributed to this library.
| Title | Categories | Content | Link | hf:doc_categories |
|---|---|---|---|---|
| A story of courage | Awareness | YouTube Video with interviews | aware | |
| AIU Patreon | Social Media | social | ||
| AIU on Pinterest | Social Media | social | ||
| AIU on Twitter | Social Media | social | ||
| AIU on Youtube | Social Media | social | ||
| AIU on instagram | Social Media | social | ||
| AIU on linkedin | Social Media | social | ||
| Solucortef Injection Training from the SUCCEED clinic | Emergency, Injection Instructions |
YouTube video |
emergency injection | |
| White Board video | Awareness, Emergency |
Short video about emergency protocols |
aware emergency | |
| Alabama | Emergency, Protocols |
State Wide Protocol |
emergency protocols | |
| North Carolina | Emergency, Protocols |
State Wide Protocol |
emergency protocols | |
| Connecticut | Emergency, Protocols |
State Wide Protocol |
emergency protocols | |
| Pennsylvania | Emergency, Protocols |
State Wide Protocol |
emergency protocols | |
| Massachusetts | Emergency, Protocols |
State Wide Protocol |
emergency protocols | |
| Maine | Emergency, Protocols |
State Wide Protocol |
emergency protocols | |
| New Hampshire | Emergency, Protocols |
State Wide Protocol |
emergency protocols | |
| Maryland | Emergency, Protocols |
State Wide Protocol |
emergency protocols | |
| Michigan | Emergency, Protocols |
State Wide Protocol |
emergency protocols | |
| Rhode Island | Emergency, Protocols |
State Wide Protocol |
emergency protocols | |
| Montana | Emergency, Protocols |
State Wide Protocol |
emergency protocols | |
| Vermont | Emergency, Protocols |
State Wide Protocol |
emergency protocols | |
| New Jersey | Emergency, Protocols |
State Wide Protocol |
emergency protocols | |
| Wyoming | Emergency, Protocols |
State Wide Protocol |
emergency protocols | |
| Arizona | Emergency, Protocols |
State Wide Protocol |
emergency protocols | |
| Arizona | Emergency, Protocols |
State Wide Protocol |
emergency protocols | |
| Wisconsin | Emergency, Protocols |
State Wide Protocol |
emergency protocols | |
| Georgia | Emergency, Protocols |
State Wide Protocol |
emergency protocols | |
| EMS training PP | Emergency, Provider Resources |
EMS training |
emergency providers | |
| Managing Adrenal Insufficiency | Adrenal Insufficiency, Self Care |
From the National Institutes of Health |
ai101 care | |
| Solu-Cortef Administration-Photos | Emergency, Injection Instructions |
Picture instructions for solu-cortef |
emergency injection | |
| Oregon Training Protocol for Schools | Adrenal Insufficiency, Emergency, Provider Resources, School Resources |
Training on AI created by the state of Oregon |
ai101 emergency providers school | |
| Oregon Heath Dep. Info on AI | Emergency, Provider Resources, School Resources |
Information on AI on the State of OR website |
emergency providers school | |
| Support for Spouse, Family, Friends | Social Media, Support Groups |
Facebook group for those supporting adults with AI |
social support | |
| Adrenal Insufficiency Support | Social Media, Support Groups |
Facebook group for adults with AI |
social support | |
| Parents/Caregivers | Social Media, Support Groups |
Facebook group for those supporting children with AI |
social support | |
| Service Dogs | Social Media, Support Groups |
Facebook group to discuss service dogs |
social support | |
| Confirmed AI conditions | Adrenal Insufficiency, Related Conditions |
A list of conditions that can coexist or cause AI |
ai101 related | |
| School Resources/Parents | School Resources |
A folder of downloads parents may find helpful |
school | |
| School Legislation | Awareness, School Resources |
Bills passed allowing staff to administer medications for adrenal insufficiency |
aware school | |
| Tapering Guide | Adrenal Insufficiency |
Glucocorticoid Tapering Guide from the Adrenal Insufficiency Coalition |
ai101 | |
| Adrenal Crisis Pathway | Emergency |
Created by Professor Peter Hindmarsh at GOSH and CAH IS US |
emergency | |
| Illness Guide | Adrenal Insufficiency, Self Care |
Created by Professor Peter Hindmarsh at GOSH and CAH IS US |
ai101 care | |
| Sick Day Rules | Adrenal Insufficiency, Self Care |
What to do when ill from the National Institutes of Health |
ai101 care | |
| Emotional Health Presentation | Adrenal Insufficiency, Self Care |
Chronic Conditions and Mental Health by Kyle Gillett (adults & children) |
ai101 care | |
| Texas | Emergency, Protocols |
Protocols for counties in Texas |
emergency protocols | |
| Forida | Emergency, Protocols |
Protocols for counties in Florida |
emergency protocols | |
| Oregon | Emergency, Protocols |
Protocols for counties in Oregon |
emergency protocols | |
| North Carolina | Emergency, Protocols |
Protocols for counties in North Carolina |
emergency protocols | |
| New York | Emergency, Protocols |
Protocols for counties in New York |
emergency protocols | |
| Washington DC | Emergency, Protocols |
Protocols for DC |
emergency protocols | |
| Arizona | Emergency, Protocols |
State Wide Protocols Adults/Children |
emergency protocols | |
| Michigan | Emergency, Protocols |
State Wide new |
emergency protocols | |
| Missouri | Emergency, Protocols |
Protocols and Danny’s Dose Legislation |
emergency protocols | |
| Washington | Emergency, Protocols |
Protocols for counties in Washington State |
emergency protocols | |
| Testing Info | Adrenal Insufficiency |
Tests for Adrenal Insufficiency |
ai101 | |
| EMS Training Materials | Emergency, Provider Resources |
MA EMS Training/Case Studies/Up the Creek without a Paddle presentation |
emergency providers | |
| Picture Cards | Awareness |
Picture Cards for schools—uses photos to help explain low cortisol |
aware | |
| Emergency Letter | Emergency |
From the Endocrine Society |
emergency | |
| Visiting the EMS Station | Awareness, Emergency |
A folder with downloads of samples to share with EMS |
aware emergency | |
| Adrenal Insufficiency | Research Articles |
An article by Wiebke Arlt, Bruno Allolio with estimated population numbers of those affected by AI |
research | |
| CHIP Info | Adrenal Insufficiency, Self Care |
Eligibility The Children’s Health Insurance Program |
ai101 care | |
| SSI Children | Adrenal Insufficiency, Self Care |
Info on SSI for Children |
ai101 care | |
| Awareness Videos | Awareness |
A folder with some Quick Time and Slide Show Videos to raise awareness |
aware | |
| Testing Brochures | Adrenal Insufficiency |
Brochures about testing for AI created by the Adrenal Insufficiency Coalition |
ai101 | |
| Got Protocol? (Cards) | Emergency |
Cards to personalize to promote awareness on the need for crisis protocols |
emergency | |
| AI Awareness Profile Picture | Awareness |
Templates you can personalize and use made by Tara S for AIU |
aware | |
| AI Logos | Awareness |
A folder of Adrenal Insufficiency Logos with specific conditions |
aware | |
| Print At Home | Emergency |
Our stickers and cards in pdf form for you to print (Personal Use Only-may not be sold) |
emergency | |
| AIU Brochure | Awareness |
A brochure about Adrenal Insufficiency United |
aware | |
| SSI Adult | Adrenal Insufficiency, Self Care |
Info on SSI for Adults |
ai101 care | |
| Therapy of Endocrine Disease | Research Articles |
National Institutes of Health recognizes the need for more education on AI |
research | |
| Electrolytes and Hydration | Adrenal Insufficiency, Research Articles, Self Care |
Merck Manual explains the process of dehydration |
ai101 research care | |
| Affect of Hydrocortisone Dose | Research Articles |
HC in Secondary AI Patients |
research | |
| Thyroid and AI | Adrenal Insufficiency, Related Conditions, Research Articles |
Consequence of taking this thyroid medication without proper adrenal support |
ai101 related research | |
| AI and Hospital admissions | Emergency, Research Articles |
Increased morbidity and hospital admissions in patients with adrenal insufficiency |
emergency research | |
| IGA Deficiency | Research Articles | research | ||
| Adrenal Failure and Glucocorticoids | Research Articles, Secondary Adrenal Insufficiency, Tertiary Adrenal Insufficiency |
Adherence to glucocorticoid treatment guidelines improved, but risk for adrenal failure remains |
research sai tai | |
| AI & Emergency Medicine | Emergency, Research Articles |
Adrenal Crisis in Emergency Medicine |
emergency research | |
| Adrenal crisis and severe acute adrenocortical insufficiency | Emergency, Research Articles |
Affects of being undiagnosed or ineffectively treated |
emergency research | |
| AI Patients…Crisis Education | Research Articles |
Adrenal Insufficiency Patients Require More Education on Adrenal Crisis |
research | |
| Extensive Expertise in Endocrinology | Research Articles |
Adrenal Crisis European Society of Endocrinology: Dr Bruno Allilo |
research | |
| Therapy of Endocrine Disease | Research Articles |
Perspectives on the management of adrenal insufficiency: clinical insights from around Europe |
research | |
| Addison’s Disease – Mayo | Primary Adrenal Insufficiency, Research Articles |
From the Mayo Clinic |
pai research | |
| Addison’s Disease – NIH | Primary Adrenal Insufficiency, Research Articles |
From the NIH |
pai research | |
| Corticosteroid – secondaryAI | Research Articles, Secondary Adrenal Insufficiency |
Inhaled corticosteroids and Secondary Adrenal Insufficiency, 2014 |
research sai | |
| Corticosteroid – side effects | Research Articles, Secondary Adrenal Insufficiency, Tertiary Adrenal Insufficiency |
Corticosteroid-related central nervous system side effects |
research sai tai | |
| Adrenal Suppression | Research Articles, Secondary Adrenal Insufficiency, Tertiary Adrenal Insufficiency |
screening and management |
research sai tai | |
| Steroids and Asthma | Research Articles, Secondary Adrenal Insufficiency, Tertiary Adrenal Insufficiency |
A link between the use of steroids to treat asthma and adrenal insufficiency |
research sai tai | |
| Gene Therapy Video | Adrenal Insufficiency Research Trials, Congenital Adrenal Hyperplasia |
Video |
research-2 cah | |
| Adrenas Trial Website | Adrenal Insufficiency Research Trials, Congenital Adrenal Hyperplasia | research-2 cah | ||
| Adrenas Info & Resources | Adrenal Insufficiency Research Trials, Congenital Adrenal Hyperplasia | research-2 cah |