Working to improve the lives of those affected by adrenal insufficiency
Adrenal insufficiency can be hidden in our society because those who are affected either carry on through the challenges, or end up homebound and unseen. Adrenal Insufficiency can be caused by several conditions, most of them rare and many patients struggle to find experienced physicians and proper treatment.
A good support system improves quality of life. AIU provides patient and family support. We invite you to connect with others through our Facebook groups, Video Support Sessions, Conferences and Local Gatherings.
Throughout this website we hope you will find much to help increase your knowledge of adrenal insufficiency. We also encourage you to view our past conference sessions.
Our next conference will be in 2025 or 2026. We’ll update once we determine the dates and location.
Awareness & Action
AIU works to create more awareness and understanding of the needs in our community. At times this has led to legislative action.
We are an organization serving anyone affected by adrenal insufficiency (AI). There are many conditions, most of them rare, which can lead to AI. Since we are not experts on all of these conditions we strive to collaborate with other patient organizations in the rare disease community.
We Get It!
We understand! All of us here at Adrenal Insufficiency United are directly affected by AI.
Meet one of our founding members and her family through this moving video. Our thanks to Jordan Poyer for bringing Adrenal Insufficiency into the limelight!
Why we started
Before social media, we were virtually alone. While we struggled to understand this disease, we watched our loved ones suffer. Plagued by nightmares about what would happen if we weren’t there to give our loved ones the injection to save their lives, many of us felt anger, depression, hopelessness, and frustration. We could not accept that this was the best care possible. We knew there had to be something better. In our own ways we fought, but we fought alone.
Then along came the internet and social media. We started to find each other and see that we WE WERE NOT ALONE! We realized that we must unite as one voice to effectively create change. We banded together, a grassroots group of patients and loved ones, selling cupcakes, and knocking on government doors, and Adrenal Insufficiency United was born.
Every person affected by adrenal insufficiency deserves a chance to reach their full potential.
Our governing body is, and will always be, comprised of those affected by adrenal insufficiency.
We pledge to never lose sight of why this group was started.