Community Support & Resources
Community Support & Resources
You are NOT ALONE! There are so many wonderful groups and organizations to support you!
Receiving an adrenal insufficiency diagnosis can feel overwhelming. While we understand the challenges that come with this journey, we want to warmly welcome you to our AI family. Our goal is to provide guidance, support, and education to help you navigate this new path with confidence. This page provides a variety of support resources to help you connect with others, find reliable information, and navigate life with adrenal insufficiency.
Online Support Groups Run by AIU
All of our Facebook groups require membership questions to be answered before joining. Discussions about supplements, herbs, special diets, or alternative treatments for adrenal insufficiency are not permitted. Additionally, selling products or personal fundraising is strictly prohibited.
Adrenal Insufficiency Support
Parents & Caregivers of Children with AI
Caregiver/Supporter of an adult with AI
Cortisol/Service Dog Discussion Group
AIU Conference Attendees
Additional support groups hosted by other organizations or individuals
Adrenal Disease Support Group
Adrenal Disease Support Group Offers information and support for those who are symptomatic, being tested for, or who are diagnosed with Addison’s disease or other forms of adrenal insufficiency.
Congenital Adrenal Hyperplasia
Congenital Adrenal Hyperplasia (CAH) is a family of inherited disorders affecting the adrenal glands.
Cushings Disease
Cushing’s Disease A safe place for people to gather, share, care, empathize, encourage, and commiserate about their journey with Cushing’s Disease.
Crainopharyngioma Group
Crainopharyngioma Group A group of patients and survivors of a craniopharyngioma brain tumor. Offering support and encouragement to all ages and ethnicities.
Parental Support for Adrenal Insufficient Children
Parental Support for Adrenal Insufficient Children This group is open to parents or guardians of children diagnosed with adrenal insufficiency.
Hypopituitary Support Group
Hypopituitary Support Group This group is to bring all of these people together into one place as a community and share/support each other to the best of our abilities. All people are welcome to join our group and learn about our condition. Family, friends, and people interested in learning more or wanting to give support to their “Hypopit” loved ones are encouraged to join also.
Living with Addison’s Disease
Living with Addison’s Disease The LWA is an Adrenal Support Group for anyone who has or cares for someone with Adrenal Insufficiency. We support all Faiths & have a Weekly Event for Special Prayer Intentions. If you find this offensive, many other AI Support groups exist that may better suit your needs.
Interested in organizing a gathering in your area? Contact us today, AIU and the NADF are happy to help you get started!
Opportunities to find support in your community.
These suggestions are meant to jump start your imagination. In any size community, there are ways to connect with others. Even small interactions can help ease feelings of isolation. For example, a trip to the grocery store can become a social event by saying hello to other shoppers, the person ringing up your order, and the one carrying it to the car for you. Your friendly greeting may be just what they need.
Connect with others in your community
- Senior Centers; these are often sponsored by local civic governments, and offer a variety of programs, such as gentle exercise, crafts, games, speakers, outings, etc. Many offer transportation services.
- Community Recreation Centers have regular events. During the summer activities in the park can be a good excuse to sit and people watch or make new friends.
- Libraries; many programs run during the day are attended by retired people or folks who are unable to work for a variety of reasons.
- Arts Organizations and Guilds; these can be a source for making new friends and developing new interests; many are happy to accept beginners as new members.
- Education Institutions; Universities and Colleges offer a variety of courses that can be attended in person or enjoyed online; some have discounted fees, or are offered free to seniors. Informal classes can be a great way for single people to meet others with the same interests.
- Faith-based groups; churches have social events, study groups, and other ways to connect through mutual beliefs.
- Doctors’ Offices often post notices and brochures advertising local health-based support.
- Some hospitals run support groups for various health issues.
- National Organizations such as AARP (U.S.) and CARP (Canadian) offer a variety of services and information with links to regional branches.
Additional Resources
Contact us to add your website or blog, and please cite Adrenal Insufficiency United as a resource on your site.