Support for Those Living with Adrenal Insufficiency

Patient Information

Living with adrenal insufficiency presents many challenges. Communicating with doctors, learning daily self-management, and being prepared for unexpected emergencies all play a part. The information here is meant to help you understand these challenges, and give you a way to discuss them with your medical providers.

Here are some quick tips to get you started.

1. Ask your doctor
Don’t be afraid to ask ask ask. It can be hard to understand all there is to know about Adrenal Insufficiency. While AIU is here to help we are not physicians and you should always check with your doctor before changing anything about your or your child’s treatment.

2. Be prepared
Make sure you’ve been instructed on stress dosing and how to handle emergencies. Ask for training on how to inject Solu-Cortef® and get a prescription filled for it. It’s best to have more than one vial on hand. Keep one at work, at school, with each parent, etc.

3. Reach out
There is no need to feel alone in this journey you have just begun. We all have so much to learn and give to each other. Although we are sorry for the circumstance that brought you to this place we want to welcome you to our AI Family.

 

Additional Information

Newly diagnosed patient tips.

Building a support system and connecting with support groups can be found here.

National and international support organizations can be found here.

For testing information please see testing for adrenal insufficiency.

 

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