Support for Those Living with Adrenal Insufficiency

Landon the Brave

Landon the Brave

Landon1My name is Lora Joy Adzima. I am the mother of two boys, Avery -14 and Landon-12. My youngest, Landon had been sick since he was born. He had feeding problems, failure to thrive, Reactive Airway Disease, severe allergies that caused him to have sinus infections constantly, hospitalization for Pneumonia, severe Reflux, low muscle tone, fatigue, etc. At age 5 he had a Fundoplication surgery to help with the reflux. He was supposed to be out of the hospital the next day, but ended up being there a week. His body just would not bounce back. This also happened when he had Pneumonia, he was in the hospital much longer than they expected, but again his body just wouldn’t recover quickly.

Landon was diagnosed with Growth Hormone Deficiency when he was 6 years old and then 6 weeks later was diagnosed with Secondary Adrenal Insufficiency. He started GHD treatment and was put on Hydrocortisone. Things were better for awhile but he still did not grow, was continuing to have bouts of dizziness and low blood sugar and was tired all of the time. I made an inquiry to the National Institute of Health in Bethesda, Maryland and a doctor responded quickly. Within 2 weeks Landon and I were flown to the NIH. It was there that they discovered that Landon actually had Primary Adrenal Insufficiency (Addison’s Disease). They tweaked his meds and sent us home. He started doing a lot better. Landon has had 2 crises since then. One was from complications of the Flu, which landed him in the PICU. The other was just last summer when he suffered from an anaphylactic reaction to 3 wasp stings.

Needless to say, Landon has been through a lot for his 12 years.

One thing we have never done is not let him do what he loves. The main love of his life is wrestling. Although, we had to figure out how to dose him during practices and tournaments and although he is wiped out for 2 days afterward, and although I hold my breath all of the time during his wrestling matches (praying that he doesn’t get hurt and that he can endure as needed), I find much joy in seeing him do something that he loves.

LandonLandon has had a very successful season this year so far. He has medaled at every tournament and was chosen as an all conference wrestler in his weight class. Landon wrestles with such strength, endurance, heart, sportsmanship and integrity. He often has other people cheering for him who don’t even know him. It’s like they know there is something special about this kid. And there is! He is a kid who is doing what he loves, despite the extra effort it takes.

Landon has a huge heart, an amazing smile, draws people to him and has a courageous spirit that won’t quit. He is brave in so many ways and is a very strong young man. We are so proud of him.

I pray that as parents of children with AI, that you will allow them to do what they love so that they can be an example to other children with AI or chronic diseases. It’s one way to not let their disease win! So here‘s to Landon the Brave, my hero! I love you with all my heart!

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