Support for Those Living with Adrenal Insufficiency

Conference 2019

AIU has some exciting plans!

Mark your calendars for April 25 – 28.
AIU’s 2019 conference will be held in Charlotte, NC. at the Uptown Embassy Suites.

Register Now!
Learn about how to sponsor our conference!

 

Conference Details:

Time: Registration starts at noon on Thursday. There will be informal networking opportunities before our first session at 1:30 p.m. The conference will end at noon on Sunday. Lunch is NOT included on Sunday.

Transportation: The hotel does not offer transportation from the airport to the hotel. Attendees may use Lyft, Uber, or taxis. We will be looking into shuttle service and will provide additional information at a later date if that becomes possible.

Parking: $28 per day at the hotel. Less expensive parking may be available Uptown Parking

Registration Includes:

  • Lunch on Friday and Saturday
  • Entry to all sessions
  • Activities for students in middle & high school

There will be add on fees for child care or camp.  (see more on our registration page coming soon)

Additional Information:

  • Our extended days will enable us to spread out the sessions and provide more opportunities for networking and socializing.
  • On site child care for children 3 and up will be offered if there are at least 10 children who sign up. Cost for child care will $30 per child and will be offered only during sessions. You will not be charged unless we get 10 children signed up.
  • Fundraising has begun and will continue until funds are raised to cover our cost.
  • Travel stipends will be offered if fund raising goals are exceeded.

Still to come:

  • Registration for the conference will start by October.
  • Please wait to make your hotel reservations until we have our registration set up. Don’t worry rooms are set aside for us.
  • We’re still booking speakers and will add them here.

How you can help
Join a committee! We will need help with planning, fundraising, collaboration, social media and more.

Confirmed Speakers
Kyle Gillett  PhD, LMFT

Kyle received his Ph.D. in Marriage and Family Therapy from Texas Tech University. As a licensed Marriage and Family Therapist, Kyle has worked in a variety of clinical settings over the last seventeen years. His career has focused on treating both boys and girls, with specialization in trauma, processing difficulties, eating disorders, depression, anxiety, OCD and difficult family systems. Kyle is a founder of the Solstice family of programs—located in Layton, UT and Asheville, NC. He has served in many roles including Primary Therapist, Clinical Director, Admissions Director, Program Director, and Executive Director. He is thrilled to have founded Equinox with a group of wonderful partners, and once again serve in the role of Executive Director.

Kyle is a Level 1 CrossFit Trainer and enjoys everything CrossFit along with a variety of other sports. His favorite things include spending time with his beautiful wife, four wonderful sons, sweet baby girl, and his dog, Shadow, playing all sorts of games, hiking, camping, fishing, reading, watching movies, etc.
Kyle will be joined by some of his colleagues enabling breakout sessions for various groups such as affected adults, parents, teens, and spouses/family members.
Mimi Kim, MD, MSc
Co-director, CAH Comprehensive Care Clinic
Attending Physician
Investigator, Endocrinology, Diabetes and Metabolism
Associate Professor of Clinical Pediatrics, Keck School of Medicine of USC

Awards: The James H. Zumberge Research and Innovation Fund Individual Research Award (2015-2016); The Saban Research Institute Innovative Pilot Award (2012-2013). SC-CTSI KL2 Scholar (2011-2014); The Saban Research Institute & CHLA CRACDA Awardee (2009-2011); Women in Endocrinology Young Investigator Award (2009).

Larry Kurt Midyett  MD

Dr. Midyett, attended the medical school at the University of Kansas and completed his residency in internal medicine and pediatrics and his fellowship in pediatric endocrinology.

Larry Midyett is a friendly and warm pediatric endocrinologist, pediatrician, internist, and primary care doctor caring for the Overland Park Pediatric Specialty Group. Dr. Midyett obtained his medical degree from the University of Kansas. He also completed his residencies in pediatrics and internal medicine at the same university and fellowship in pediatric endocrinology at Children’s Mercy Hospital.

Dr. Midyett is a part of Overland Park Pediatric Specialty Group. He is board certified by the American Board of Internal Medicine and specializes in pediatric endocrinology. His clinical interests include pediatric endocrine disorders, diabetes, intensive insulin therapy and diabetes technology, helping pediatric patients transition to adult care, growth disorders, turner syndrome. He has treated and managed a diverse range of medical dysfunctions and is committed to providing the best comprehensive medical care available.

Eliza B. Geer, MD

Dr. Geer is an endocrinologist who specializes in caring for people with pituitary and neuroendocrine diseases. She is the Medical Director of Memorial Sloan Kettering’s Multidisciplinary Pituitary & Skull Base Tumor Center, located at Memorial Hospital in Manhattan. At this center, experts from many areas — including neurosurgery, head and neck surgery, endocrinology, radiation oncology, and medical oncology — work together to offer comprehensive care for people with pituitary and skull base tumors, in order to improve and advance the care of people with these conditions.

Her research interests focus on achieving a better understanding of how pituitary tumors develop, and characterizing long-term outcomes in patients with Cushing’s disease. She has conducted a number of studies investigating body composition, adipose tissue regulation, and appetite in patients with Cushing’s disease, and is involved in clinical trials investigating new medical therapies for patients with Cushing’s and acromegaly.

She completed her internship and residency at the New York-Presbyterian Hospital/Columbia Medical Center, and fellowship in endocrinology and metabolism at the Icahn School of Medicine/Mount Sinai Medical Center. As part of her academic career, she spent 10 years as a faculty member at the Icahn School of Medicine and Mount Sinai Medical Center. She is currently an associate professor of medicine and an active member of the Endocrine Society, the Pituitary Society, and the American Association of Clinical Endocrinologists.

Deanna Pomfret

Deanna has coached fitness enthusiasts, runners, swimmers and triathletes since 2005. She has a master’s degree in Health and Wellness Management with a research fellowship in Sports Nutrition. She is a USA Triathlon Level 1 Coach, Road Runners Club of America Certified Running Coach, Certified Functional Strength Coach, US Master’s Level 3 swim coach, and principal of Athletic Pursuits LLC.

Deanna helps adults with personalized coaching and training for general fitness and for special events like triathlons, marathons and anything her athletes dream up. She is a presenter at Harvard University Medical School for their endocrine clinics and homeostasis lectures. She also presents for clubs, hospitals and symposiums on the science and art of training and coaching. She is a regular contributor to USA Triathlon’s e-newsletter and blogs about training and living with autoimmune diseases.

Deanna puts enjoyment first with her personal athletic pursuits and always focuses on what she can do. She has participated in many triathlons, running races and ran two marathons before her Addison’s diagnosis in 2011. Since being diagnosed with Addison’s she has qualified for USA Triathlon’s Age Group Olympic Distance National Championships three times. She competed twice and took 9 minutes off her time on the course. She also completed the Boston Marathon in 2016.

Deanna can be reached at deanna@athleticpursuits.net or through her website Athletic Pursuits LLC https://www.athleticpursuits.com.

Amber Nicole

Amber officially launched Clearly Alive Art in 2012 as her primary avenue for sharing her adventures of living with Adrenal Insufficiency, a diagnosis she officially received in 2005. In 2013, she went public with her extreme adverse reaction to a specific brand of generic hydrocortisone. Since its initial publishing, her recount of the poisoning from the inactive ingredient of Sodium Lauryl Sulfate has allowed hundreds of others to avoid the same fate. In 2014, she was able to successfully launch her Zazzle Storefront challenging people to “Ask Me About Life Saving Steroids.”

In 2015, her Theoretical Steroid Curve Plotter went live, with a second release for the cortisol pump in 2016. The Curve Plotter has been recognized world wide as a useful tool empowering patients to improve their quality of life. It took over three years to develop, and she is incredibly humbled at the number of people it has helped.

Over the years, she has been able to share her mission to be Clearly Alive through a variety of avenues and platforms. These include being an invited guest speaker and a guest writer. Amber Nicole believes that we should do more than just live. We should all strive to be Clearly Alive.

Amber Nicole can be reached at amber.nicole@clearlyaliveart.com or through her website clearlyaliveart.com

Dianna Cannon

Dianna Cannon has been practicing Social Security Disability Law for over 25 years.  She is a sustaining member of the National Organization of Social Security Claimant’s Representatives and an adjunct professor at the S.J. Quinney College of Law where she teaches Disability Law. She has been elected by her colleagues to Utah’s Legal Elite, featured in Utah Business Magazine, and is a past president of the Women Lawyer’s of Utah.  She is also licensed to practice law in Utah, Nevada, and California.

Over the past 27 years, Ms. Cannon has won thousands of disability cases at the hearing level. She has also won many cases at the Appeals Council and in Federal Court.  Ms. Cannon states that while winning a client’s disability case is the ultimate goal, “helping people navigate Social Security’s paperwork, understanding  medical issues, and obtaining important evidence is where Cannon Disability Law excels. ”  She states, “We want our client’s to know we are on their side and we are behind them 100% during what can be the difficult process of winning benefits. We have the experience to do the job well and our success rate speaks for itself.”  

Session 1:  Social Security Disability/ Supplemental Security Income and the difference between the two.
Session 2:  Qualifying for disability and then, for SSI, qualifying financially.
Links for Uptown Charlotte
Maps of Uptown Charlotte (our hotel is right next to the NASCAR Hall of Fame)
Free and Cheap things to do in Charlotte, NC

Backpack Health App for AI

An app to help improve daily self-management of your health information, while contributing to research, and improving access to AIU support. Join the AIU Backpack Health Group now at: join.backpackhealth.com/aiu

Sponsors

Recent News and Events

  • Kinship in the company of strangers
    Kinship in the company of strangers
    October 22, 2018 by
    I grew up in the township of Pennfield, Michigan, about seven miles north of Battle Creek, which you may recall is the home of Tony the Tiger.  If you are about my age, you recall hearing the Kellogg’s company slogan, “The best to you each morning,” just...
    Read more
  • AIU News and Upcoming Events
    AIU News and Upcoming Events
    August 23, 2018 by
    AIU News NEW: AIU’s monthly Fundraising Contest. Each month the person raising the most funds for AIU will receive a $30 gift certificate to our online store. Everyone who has any type of fundraiser will be entered into a drawing for a $20 gift certificate. We will...
    Read more
"150" post_thumb_height="150"]

Contact Us

Facebook
Instagram
LinkedIn
Pinterest
Twitter
YouTube
Patreon

Join our Email List

We respect your privacy and will never share your information.