Registration for AIU’s first ever conference devoted to adrenal insufficiency is now open!
We are thrilled to open registration for our March 23-25 conference held in Kansas City, MO. With an amazing line up of professionals addressing a wide range of topics this conference is not to be missed.
AIU is run by those directly affected by adrenal insufficiency. With the help of our members and FB family we chose a wide variety of topics important to the AI community. We are excited to present education, resources, and camaraderie all under one roof!
- Location: Embassy Suites by Hilton Kansas City International Airport; 7640 NW Tiffany Springs Parkway, Kansas City, Missouri, 64153 (all rooms come with a free hot breakfast)
- Dates: March 23 – 25, 2018
- Time: Starts Friday at 1:00 p.m. Ends Sunday at 1:00 p.m.
- Meals: Friday night reception with Hors D’oeuvres and Lunches on Saturday and Sunday
- $60 (teens and adults age 13 and older)
- $40 (children ages 3-12)
- $200 Family Rate (includes 5 family members in the same household ages 3 and up)
- children 2 and under free
- Child Care: On site child care available for an additional fee
- REGISTRATION LINK! A link to reserve lodging will be sent when your registration has been received and processed.
- Join our FB event page for more updates
AIU could use your help!
Thanks to the generosity of the of the Murrow family in Mo, as well as all those who donate and raise funds for AIU, we have a great start on conference funding. We are still actively looking for sponsors and vendors to participate. If you know any businesses or individuals who would like to be involved, please let us know at email@example.com Subject line text “sponsors”
Mitchell Geffner MD
Dr. Geffner is Chief of the Division of Endocrinology, Diabetes, and Metabolism at Children’s Hospital Los Angeles (CHLA), Professor of Pediatrics at the Keck School of Medicine of USC, the Ron Burkle Chair in the Center for Endocrinology, Diabetes, and Metabolism, and Co-Director of the CAH Center of Excellence at CHLA. He graduated from the Albert Einstein College of Medicine (1975); was a house officer at LAC-USC Medical Center (1975-1979); and completed his fellowship in Pediatric Endocrinology at UCLA (1979-1982). Dr. Geffner is Past-President of the Pediatric Endocrine Society (2014-2015). Dr. Geffner is principal investigator at CHLA of the NIH-sponsored TODAY2 trial that is studying long-term outcomes of youth with T2DM and national consultant to the NIH-sponsored PHACS study of endocrinological/metabolic manifestations of HIV infection and its treatment in childhood. He has served on the American Board of Pediatrics Sub-Board on Pediatric Endocrinology; as a Director of the Pediatric Endocrine Society; and is an advisor to the MAGIC Foundation, the Pituitary Network Association, and CARES Foundation. Dr. Geffner is Associate Editor of the journal, Pediatric Endocrinology Reviews, pediatric endocrinology editor for UpToDate, and co-editor of the textbook, “Pediatric Practice: Endocrinology” (McGraw-Hill).
Adrenal Insufficiency in Childhood: In this lecture, I will review the causes, presentations, diagnostic testing, and management of both acute and chronic adrenal insufficiency in childhood.
CAH/Adrenal Insufficiency: New Approaches and Treatments:
In this lecture, I will discuss new paradigms for hydrocortisone dosing including the cortisol clearance test. I will also review new approaches to treatment, including pump-administered hydrocortisone, including slow-and dual-release formulations of hydrocortisone, and new drug (non-hormonal) approaches, including antagonists to the receptor to corticotropin-releasing hormone (CRH) in the pituitary gland (decreasing ACTH), inhibitors of male hormone (testosterone) synthesis, and “adrenolytic” agents (that “poison the adrenal glands”).
Anthony P. Heaney MD, PhD
Dr. Heaney is a Professor at the David Geffen School of Medicine at the University of California, Los Angeles (UCLA). His primary areas of clinical and research interest involve the pathogenesis of pituitary tumors and exploiting novel molecular targets to develop innovative treatments for pituitary tumors, and other neuroendocrine tumors. A Fulbright scholar, Dr. Heaney is a Fellow of the Royal College of Physicians (UK), and member of several professional organizations, including the Endocrine Society, the Pituitary Society and the Society of Endocrinology. He has written numerous articles for such peer-reviewed publications as Journal of Clinical Investigation, Nature Medicine, Clinical Endocrinology, and Pituitary, and he has compiled book chapters for Baillieres Clinical Endocrinology and Metabolism, Oxford Textbook of Endocrinology and Endocrine Updates. Dr. Heaney is President of the International Pituitary Society and Associate Editor for the Journal of Clinical Endocrinology & Metabolism.
What are the causes of AI in adults and when do I need to stress dose?
The causes of adrenal insufficiency in adults including the distinction between primary and secondary AI. Discussions will include: when stress dosing is needed, how taking too much steroids can be harmful, the causes signs and management of adrenal crisis events including how to avoid them.
Larry Kurt Midyett MD
Dr. Midyett, attended the medical school at the University of Kansas and completed his residency in internal medicine and pediatrics and his fellowship in pediatric endocrinology.
Larry Midyett is a friendly and warm pediatric endocrinologist, pediatrician, internist, and primary care doctor caring for the Overland Park, KS, Kansas City, and Clinton, MO communities. Dr. Midyett obtained his medical degree from the University of Kansas. He also completed his residencies in pediatrics and internal medicine at the same university and fellowship in pediatric endocrinology at Children’s Mercy Hospital.
Dr. Midyett is a part of Jacobson & McElliott Diabetes & Endocrinology Center. He is board certified by the American Board of Internal Medicine and specializes in pediatric endocrinology. His clinical interests include pediatric endocrine disorders, diabetes, intensive insulin therapy and diabetes technology, helping pediatric patients transition to adult care, growth disorders, turner syndrome. He has treated and managed a diverse range of medical dysfunctions and is committed to providing the best comprehensive medical care available.
Exercise and Adrenal Insufficiency: A more detailed description coming soon.
Bronwen Erickson BSN; MSN-FNP
Bronwen is a nurse practitioner board certified in family medicine. She received her BSN from Texas Tech University Health Sciences Center and her MSN-FNP from Texas A&M University. She has extensive clinical experience in treating metabolic and neuroendocrine disorders, digestive disorders, and immune and autoimmune disorders. She is passionate about teaching patients how to triumph over complex illness and to lead vital and fulfilling lives.
The Role of Toxins/Biotoxins’ in Secondary AI
Scientists are just beginning to understand the role of toxins/biotoxins as they relate to Secondary Adrenal Insufficiency (SAI). Emerging evidence points to endocrine disruptors, mitochondrial dysfunction and chronic inflammatory response as key mediators in the rising incidences of SAI. We will explore the potential causes of SAI in relation to these mediators and what those suffering from AI, whether primary or secondary, can do to avoid and eliminate these potential triggers and significantly improve their quality of life.
Kyle Gillett PhD, LMFT
Kyle received his Ph.D. in Marriage and Family Therapy from Texas Tech University. As a licensed Marriage and Family Therapist, Kyle has worked in a variety of clinical settings over the last seventeen years. His career has focused on treating both boys and girls, with specialization in trauma, processing difficulties, eating disorders, depression, anxiety, OCD and difficult family systems. Kyle is a founder of the Solstice family of programs—located in Layton, UT and Asheville, NC. He has served in many roles including Primary Therapist, Clinical Director, Admissions Director, Program Director, and Executive Director. He is thrilled to have founded Equinox with a group of wonderful partners, and once again serve in the role of Executive Director.
Dr. Ron Hunninghake, MD
Lisa Anderson MSW, LISWS (inactive) & Ted Wong
Panel Members for a Discussion on protocols, advocacy and legislation for those with rare disease.
Darlene Gail Shelton Founder/President Danny’s Dose
Tim Boyd, MPH NORD Director of State Policy
As state policy director Tim works with rare disease groups and individuals from around the Nation Tim will be sharing more about NORD and their efforts to bring rare communities together to advocate for legislation to improve and save the lives of those living with rare disease. He will share ways in which you can become involved on a State and National level along with some of the issues NORD is tackling right now.
Tim will also be discussing NORD’s Rare Action Network.
The Rare Action NetworkSM (RAN) extends NORD’s historic leadership in national advocacy to the state and local level. Through RAN, we connect individuals and organizations within states and provide the training and resources they need to become effective advocates for policies that support the rare disease community. Support is needed from all stakeholders to build a strong, sustainable and effective advocacy network on behalf of the rare disease community.
Teresa I. Costa, ME Early Childhood/Special Education, PsyD
Teresa will be leading some of our FOCUS GROUPS. She is also working on a research project for AIU looking into the ties between emotional health and the need for stress dosing.
These small sessions will be open to 10-12 individuals and will provide a chance to discuss issues around AI in a more intimate setting. Notes will be taken to help guide AIU in our work for the future. When appropriate some of the discussions (with names masked) will be shared with our group to help us all better understand the challenges and issues facing our community as well as ideas on how to resolve them. More information on the focus groups will be given to those who register for the conference.