Support for Those Living with Adrenal Insufficiency

Archive for the Patient Help Groups Category

Growing up with Adrenal Insufficiency

Growing up with Adrenal Insufficiency  I was diagnosed with adrenal insufficiency, when I was seven years old. All I remember about that time is going to the doctor a lot and having to get my blood drawn, which like any kid, I detested. I was extremely lucky

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Five Challenges with Cushing’s Disease

Five Challenges with Cushing’s Disease       Challenges are unique to every individual, but when you stop to think about what a person with Cushing’s has to go through every day, you run into challenges you wouldn’t expect with a healthy person. Today I’ll talk about

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Another Birthday, Another Year Sick

Another Birthday, Another Year Sick I turn 27 on Tuesday.  That is the age that my mom was when I was born.  I am now half her age.  By this time in her life, she had her dream job, a house, a husband, and a new baby.

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The Importance of Perception

The Importance of Perception Written by Amber  I recently read a study conducted in 1999 by The British Psychological Society. The full study can be found here, however I will provide a brief summary for those not overly excited by statistical analysis. The goal of this study was

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The Beauty of Community

Reposted from the blog of Amber  “Living with Addison’s Disease“ I write about my life with Addison’s Disease yet until yesterday I had never met another person with the same disease. I communicate regularly online through things like this blog or online support groups, but to share

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Harmony 4 Hope

Harmony 4 Hope SM is a Chicago based non-profit foundation. Our unique mission is to use repurposed technology and live music to comfort, create community and contribute to rare disease research and awareness among community youth and the general public. On World Rare Disease Day, 2014 Harmony 4

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Flying High: The diagnosis

The Diagnosis 30,000 feet in the air. I am barely conscious but the anxious feeling took over any other fear and emotion I may have had. I packed and slept and slept for the two hours to the airport. My mind was numb and my body just

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Backpack Health App for AI

An app to help improve daily self-management of your health information, while contributing to research, and improving access to AIU support. Join the AIU Backpack Health Group now at: join.backpackhealth.com/aiu

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Recent News and Events

  • When Bloodwork isn't Just Bloodwork
    When Bloodwork isn’t Just Bloodwork
    January 28, 2019 by
    When Bloodwork isn’t Just Bloodwork Thank you to Amber for sharing this, visit her blog via the link above. Today, after one stick and lots of needle adjusting, a sweat and tear soaked 4 year old and her mama stepped out of the lab room and into a...
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  • What do you call a group of zebras?
    What do you call a group of zebras?
    December 28, 2018 by
    What do you call a group of zebras? No, I’m not joking—really, do you know what you call a group of zebras? I didn’t either until recently. Many of us are familiar with the use of the term “zebra” in the medical community to refer to an...
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