Support for Those Living with Adrenal Insufficiency

Archive for the Patient Help Groups Category

Yes you need a medical alert bracelet!

Yes you need a medical alert bracelet!

Advice from a Volunteer Firefighter with Adrenal Insufficiency My name is Jeannie, and I have been diagnosed with Secondary AI since March of 2015. To make a long story short, I was diagnosed with a pituitary adenoma in Feb of 2015. It was apron 8mm x 10mm

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Preventing death from adrenal insufficiency

Preventing death from adrenal insufficiency

By Lisa J. Markland Originally posted on FB in the Addison’s Disease Support Group. To respect privacy some names have been changed to initials. As the ADSG’s founder, along with the group’s admins, I’d like to let you all know of the very sad passing of several

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5 Ways to Manage Grief of Parenting a Child with Special Needs

Grieving is an inevitable part of parenting. All of our children were born their OWN person. Before their birth, all parents have dreams of what they see in their future with their kids. Most of us imagine the child growing up, having common experiences in adolescence, learning

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The Top 5 Reasons being a Friend with a Special Needs Mom is Awesome

The Top 5 Reasons being a Friend with a Special Needs Mom is Awesome

Being a friend to a parent of a child with special needs is not an easy task. The lives of a parent of a child with special needs are fairly chaotic, unpredictable, slightly self serving, and messy. I am a parent to a sweet little boy, and

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We’re Partnering With The Mighty!

We’re thrilled to announce a new partnership that will bring our resources in front of The Mighty‘s wide-reaching readership. We will now have a growing home page on The Mighty and appear on many stories on the site. The Mighty is a story-based health community focused on

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Importance Of The Link Between Adrenal Failure And Adrenoleukodystrophy (ALD)

This was orignially written for the Society for Endocrinology Monthly Newsletter by the www.aldlife.org .  ALD Life has given us permission to use it here in our blog. Importance of the link between Adrenal Failure and Adrenoleukodystrophy (ALD) In 2001, Alex and Ayden Hunt, from East Dulwich, were diagnosed with Adrenoleukodystrophy (ALD).

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It’s Your Life Be In It

DAY TWENTY-FOUR, CUSHING’S AWARENESS CHALLENGE   Originally written and posted on April 24, 2012 by MaryO · Comments (0)Filed under: Cushing’s Awareness Challenge 2012, Cushings Visit Cushing’s Help for more information about Cushing’s Disease       I first saw a similar image to this one with the saying Life. Be in

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Did the Tears Pour Because My Cortisol was Low?

Did the Tears Pour Because My Cortisol was Low? My last blog was HypoGal LOL about Doctors and Steroid Treatments The tears had poured down for a couple of days before my last mini adrenal crisis. The down pour of tears should have been my warning signal. But, even after

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Abram Iman: Gift of Peace & Good Will

Abram Iman: Gift of Peace & Good Will On Dec. 17th, 2011, Abram Iman celebrated his 10th birthday by making gifts for seriously ill children. These weren’t just any gifts, but carefully crafted, heartfelt gifts that Abram says – “just made me happy.” The shy, soft-spoken boy

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Growing up with Adrenal Insufficiency

Growing up with Adrenal Insufficiency  I was diagnosed with adrenal insufficiency, when I was seven years old. All I remember about that time is going to the doctor a lot and having to get my blood drawn, which like any kid, I detested. I was extremely lucky

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We have a problem.

250,000 Americans are diagnosed with adrenal insufficiency. 6,000,000 more are considered to be adrenal insufficient yet remain undiagnosed.

Recent News and Events

  • Yes you need a medical alert bracelet!
    Yes you need a medical alert bracelet!
    July 17, 2017 by
    Advice from a Volunteer Firefighter with Adrenal Insufficiency My name is Jeannie, and I have been diagnosed with Secondary AI since March of 2015. To make a long story short, I was diagnosed with a pituitary adenoma in Feb of 2015. It was apron 8mm x 10mm...
    Read more
  • How cupcakes helped make a new law.
    How cupcakes helped make a new law.
    July 16, 2017 by
    A little over 21 years ago just after midnight my second daughter was born. During the night all I could do was look at her and think about how perfect she was. Later that morning, when our amazing pediatrician came to the hospital around 10 a.m. I...
    Read more

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