Support for Those Living with Adrenal Insufficiency

Archive for the Medical Category

Conference on Adrenal Insufficiency

Conference on Adrenal Insufficiency

Registration for AIU’s first ever conference devoted to adrenal insufficiency is now open! We are thrilled to open registration for our March 23-25 conference held in Kansas City, MO.      With an amazing line up of professionals addressing a wide range of topics this conference is not to

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Yes you need a medical alert bracelet!

Yes you need a medical alert bracelet!

Advice from a Volunteer Firefighter with Adrenal Insufficiency My name is Jeannie, and I have been diagnosed with Secondary AI since March of 2015. To make a long story short, I was diagnosed with a pituitary adenoma in Feb of 2015. It was apron 8mm x 10mm

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Cortisol pump: Continuous Subcutaneous Hydrocortisone Infusion – a patient experience.

Cortisol pump Continuous Subcutaneous Hydrocortisone Infusion – a patient experience. by Desley Rolph The below information is purely my personal experience and thoughts, as a patient, relating to using Continuous Subcutaneous Hydrocortisone Infusion, for treatment of Adrenal Insufficiency, using an insulin pump. (It is not Medically researched

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Glucocorticoid tapering and adrenal suppression testing guide

INTRO We are pleased to publish our new Glucocorticoid Tapering and Adrenal Suppression Testing guide.   We created this guide to address the growing need for information on a misunderstood topic. Primary adrenal Isufficiency from autoimmune causes remains a rare condition the number of Secondary Adrenal Insufficient

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The Rights of Students with Disabilities

The Rights of Students with Disabilities Although Adrenal Insufficiency is life threatening, our kids look just like everyone else’s kids and school personnel may not understand the dangers they face.  This makes Adrenal Insufficiency(AI) a Hidden Disability.  Luckily there are Federal Laws and Regulations that protect children

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Landon the Brave

Landon the Brave My name is Lora Joy Adzima. I am the mother of two boys, Avery -14 and Landon-12. My youngest, Landon had been sick since he was born. He had feeding problems, failure to thrive, Reactive Airway Disease, severe allergies that caused him to have

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Awakening From Our Bad Dream, Safely

Have you ever had a dream where a bad entity or something was chasing you? Written by: Me and Mine Clearly you were in eminent danger. But try as you might, you cannot run. You cannot move or maybe your movement is so delayed that it’s just the

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The Horrible, Hideous Monster

The Horrible, Hideous Monster By Tricia Godt Borchardt It attacked me. It gradually took over my body and changed my appearance and I thought there was nothing I could do about it. I thought it was normal. I thought I just needed to work harder on my

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The Journey We Never Saw Coming

This post was first featured on Baby’s First Test, visit their website for more information about newborn screening. Posted: April 15, 2013 at 5:35pm by Allie Kelly Kohen looking as cute as ever thanks to newborn screening! On April 22, 2012, I gave birth to my sweet

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Signs and Symptoms Survey Results

Study Participants Adrenal Insufficiency United (AIU) conducted a study to compare the symptoms and life experiences of those affected with Adrenal Insufficiency (AI) to with those without AI.  Data was collected using Survey Monkey.  Participants were found, in both the control and affected group, through Facebook. The

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Backpack Health App for AI

An app to help improve daily self-management of your health information, while contributing to research, and improving access to AIU support. Join the AIU Backpack Health Group now at: join.backpackhealth.com/aiu

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Recent News and Events

  • When Bloodwork isn't Just Bloodwork
    When Bloodwork isn’t Just Bloodwork
    January 28, 2019 by
    When Bloodwork isn’t Just Bloodwork Thank you to Amber for sharing this, visit her blog via the link above. Today, after one stick and lots of needle adjusting, a sweat and tear soaked 4 year old and her mama stepped out of the lab room and into a...
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  • What do you call a group of zebras?
    What do you call a group of zebras?
    December 28, 2018 by
    What do you call a group of zebras? No, I’m not joking—really, do you know what you call a group of zebras? I didn’t either until recently. Many of us are familiar with the use of the term “zebra” in the medical community to refer to an...
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