Support for Those Living with Adrenal Insufficiency

Archive for the Adrenal Crisis Stories Category

Would You Move?

Would You Move? Two years ago, I passed out during adrenal crisis. When I did, I was visiting my then long distance boyfriend on the opposite side of the state, the less populated side. We did figure out at that time that my living with him as

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Mother, Wife and Friend

I wanted to share my story so that it might help others get diagnosed: I had a pituitary Macroadenoma removed in 1997 because it was pressing on my optic nerve. Years later I was blessed to have my beautiful twins Alyssa and Anthony in 2002. During my pregnancy

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Emergency Protocols Saved My Daughter

Emergency Protocols Saved My Daughter by Laura Adderholt Anna was born with a rare genetic condition that causes her to be adrenal insufficient, she also has Skeletal Dysplasia and Perthes Disease of the right hip.  This bone disease causes the ball joint to die and she lives with

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Get Here Now, She’s Dying!

Written by Jenny W. On a Sunday morning in May 2007 my husband and I went to check on our 18 month old daughter. We were surprised that she had not come into our room to snuggle like she had done every Sunday before. When we walked

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Waiting for the Ambulance

Among other health problems, I have Addison’s disease. Unfortunately, I know from personal experience what it is like to have an acute adrenal crisis among emergency health care workers who don’t know what to do, while I am too disoriented and weak and distressed to educate them

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Recent News and Events

  • When Bloodwork isn't Just Bloodwork
    When Bloodwork isn’t Just Bloodwork
    January 28, 2019 by
    When Bloodwork isn’t Just Bloodwork Thank you to Amber for sharing this, visit her blog via the link above. Today, after one stick and lots of needle adjusting, a sweat and tear soaked 4 year old and her mama stepped out of the lab room and into a...
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  • What do you call a group of zebras?
    What do you call a group of zebras?
    December 28, 2018 by
    What do you call a group of zebras? No, I’m not joking—really, do you know what you call a group of zebras? I didn’t either until recently. Many of us are familiar with the use of the term “zebra” in the medical community to refer to an...
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