Support for Those Living with Adrenal Insufficiency

Archive for the Adrenal Crisis Stories Category

Yes you need a medical alert bracelet!

Yes you need a medical alert bracelet!

Advice from a Volunteer Firefighter with Adrenal Insufficiency My name is Jeannie, and I have been diagnosed with Secondary AI since March of 2015. To make a long story short, I was diagnosed with a pituitary adenoma in Feb of 2015. It was apron 8mm x 10mm

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Preventing death from adrenal insufficiency

Preventing death from adrenal insufficiency

By Lisa J. Markland Originally posted on FB in the Addison’s Disease Support Group. To respect privacy some names have been changed to initials. As the ADSG’s founder, along with the group’s admins, I’d like to let you all know of the very sad passing of several

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Scarlett’s Story: Recovering from an Adrenal Crisis

Our beautiful daughter, Scarlett Adelaide was born on the 26th of October 2007. At about 72hrs old, the doctor at the hospital noticed and told us ‘uummm, I don’t know how to say this, but there’s something really wrong with your child’. After a week of tests, tears

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The Day an Adrenal Crisis nearly killed my Son

Three years ago this weekend, I woke up to a sterile room of beeping, bright lights, respirators going on and off, the slow hum of a machine that was keeping my son alive. There were several doctors in the room, nurses covered in gowns and masks, heating

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Katie’s Story

  The following blog post follows the events of a tragedy within our adrenal insufficient family. For me personally it hits close to home as Katie is about the same age as my daughter.  I see this photo and cry over the horrible circumstances facing this family. 

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Inject At Home First!  Cullen’s Story

Inject At Home First! Cullen’s Story I want to preface this story with the fact that the hospital we take him to has cared for him during every single crisis he has had.  He was transported there at birth and transported again 2 weeks later for his second crash.

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Suffering For Far Too Long

Originally posted in “Our Adrenal Crisis Stories” Anonymous The day after a close friend passed away, on January 9th 2010, I became ill with a fever of 102.8.  I called my doctor’s office to set up an appointment and the nurse told me to wait a few

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Adrenal Insufficiency United and First Responders: Creating Awareness to Save Lives

Adrenal Insufficiency United and First Responders: Creating Awareness to Save Lives AIU attended the EMS Conference in Denver, CO back in May of 2012. Fire Rescue International attendees heard us call out…..”Can we share some information that could save a life?” Of all the opening lines, this one

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Addie’s Adrenal Crisis

Addie’s Adrenal Crisis My 5 year old daughter Addie has been adrenal insufficient since birth. Not long ago Addie had been playing all day acting fine, then that evening about 6:00 p.m. she started to complain of a small bellyache. I never thought anything about it because she

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Would You Move?

Would You Move? Two years ago, I passed out during adrenal crisis. When I did, I was visiting my then long distance boyfriend on the opposite side of the state, the less populated side. We did figure out at that time that my living with him as

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We have a problem.

250,000 Americans are diagnosed with adrenal insufficiency. 6,000,000 more are considered to be adrenal insufficient yet remain undiagnosed.

Recent News and Events

  • Yes you need a medical alert bracelet!
    Yes you need a medical alert bracelet!
    July 17, 2017 by
    Advice from a Volunteer Firefighter with Adrenal Insufficiency My name is Jeannie, and I have been diagnosed with Secondary AI since March of 2015. To make a long story short, I was diagnosed with a pituitary adenoma in Feb of 2015. It was apron 8mm x 10mm...
    Read more
  • How cupcakes helped make a new law.
    How cupcakes helped make a new law.
    July 16, 2017 by
    A little over 21 years ago just after midnight my second daughter was born. During the night all I could do was look at her and think about how perfect she was. Later that morning, when our amazing pediatrician came to the hospital around 10 a.m. I...
    Read more

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