Support for Those Living with Adrenal Insufficiency

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Emergency Protocols Saved My Daughter

Emergency Protocols Saved My Daughter by Laura Adderholt Anna was born with a rare genetic condition that causes her to be adrenal insufficient, she also has Skeletal Dysplasia and Perthes Disease of the right hip.  This bone disease causes the ball joint to die and she lives with

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The Beauty of Community

Reposted from the blog of Amber  “Living with Addison’s Disease“ I write about my life with Addison’s Disease yet until yesterday I had never met another person with the same disease. I communicate regularly online through things like this blog or online support groups, but to share

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The Journey We Never Saw Coming

This post was first featured on Baby’s First Test, visit their website for more information about newborn screening. Posted: April 15, 2013 at 5:35pm by Allie Kelly Kohen looking as cute as ever thanks to newborn screening! On April 22, 2012, I gave birth to my sweet

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Get Here Now, She’s Dying!

Written by Jenny W. On a Sunday morning in May 2007 my husband and I went to check on our 18 month old daughter. We were surprised that she had not come into our room to snuggle like she had done every Sunday before. When we walked

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Harmony 4 Hope

Harmony 4 Hope SM is a Chicago based non-profit foundation. Our unique mission is to use repurposed technology and live music to comfort, create community and contribute to rare disease research and awareness among community youth and the general public. On World Rare Disease Day, 2014 Harmony 4

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Signs and Symptoms Survey Results

Study Participants Adrenal Insufficiency United (AIU) conducted a study to compare the symptoms and life experiences of those affected with Adrenal Insufficiency (AI) to with those without AI.  Data was collected using Survey Monkey.  Participants were found, in both the control and affected group, through Facebook. The

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Gabe’s Birthday in the Hospital

By Cheryl Kornegay Gabriel had never had a real birthday party before. For the past nine years, we had small gatherings with grandparents, aunts, and uncles, but had just never managed to have a big party with all of his friends. This year was special. This year

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Flying High: The diagnosis

The Diagnosis 30,000 feet in the air. I am barely conscious but the anxious feeling took over any other fear and emotion I may have had. I packed and slept and slept for the two hours to the airport. My mind was numb and my body just

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Waiting for the Ambulance

Among other health problems, I have Addison’s disease. Unfortunately, I know from personal experience what it is like to have an acute adrenal crisis among emergency health care workers who don’t know what to do, while I am too disoriented and weak and distressed to educate them

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Adrenal Insufficiency In The Classroom: What every teacher needs to know.

One of your students jumps off the swing and lands hard breaking his wrist.  Parents are called and the next day he shows up with a blue cast for all the kids to sign. Now imagine this child is Adrenal Insufficient (AI), he doesn’t produce cortisol.  Without

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Backpack Health App for AI

An app to help improve daily self-management of your health information, while contributing to research, and improving access to AIU support. Join the AIU Backpack Health Group now at: join.backpackhealth.com/aiu

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