Support for Those Living with Adrenal Insufficiency

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Addie’s Adrenal Crisis

Addie’s Adrenal Crisis My 5 year old daughter Addie has been adrenal insufficient since birth. Not long ago Addie had been playing all day acting fine, then that evening about 6:00 p.m. she started to complain of a small bellyache. I never thought anything about it because she

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Growing up with Adrenal Insufficiency

Growing up with Adrenal Insufficiency  I was diagnosed with adrenal insufficiency, when I was seven years old. All I remember about that time is going to the doctor a lot and having to get my blood drawn, which like any kid, I detested. I was extremely lucky

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Five Challenges with Cushing’s Disease

Five Challenges with Cushing’s Disease       Challenges are unique to every individual, but when you stop to think about what a person with Cushing’s has to go through every day, you run into challenges you wouldn’t expect with a healthy person. Today I’ll talk about

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Would You Move?

Would You Move? Two years ago, I passed out during adrenal crisis. When I did, I was visiting my then long distance boyfriend on the opposite side of the state, the less populated side. We did figure out at that time that my living with him as

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Another Birthday, Another Year Sick

Another Birthday, Another Year Sick I turn 27 on Tuesday.  That is the age that my mom was when I was born.  I am now half her age.  By this time in her life, she had her dream job, a house, a husband, and a new baby.

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The Horrible, Hideous Monster

The Horrible, Hideous Monster By Tricia Godt Borchardt It attacked me. It gradually took over my body and changed my appearance and I thought there was nothing I could do about it. I thought it was normal. I thought I just needed to work harder on my

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Mother, Wife and Friend

I wanted to share my story so that it might help others get diagnosed: I had a pituitary Macroadenoma removed in 1997 because it was pressing on my optic nerve. Years later I was blessed to have my beautiful twins Alyssa and Anthony in 2002. During my pregnancy

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The Importance of Perception

The Importance of Perception Written by Amber  I recently read a study conducted in 1999 by The British Psychological Society. The full study can be found here, however I will provide a brief summary for those not overly excited by statistical analysis. The goal of this study was

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One of a Kind

One of a Kind Hello! My name is Karen, this is my son Nathaniel, aka Goober-Fish, or Nate, as he now calls himself. Nate who is almost 5, is the only known person in the USA with POMC.  He has a list of health issues and Adrenal Insufficiency or “A.I.” for

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Just an Average Kid

Written by Jennifer M. I asked Lily if she wanted to write something to help others learn about Adrenal Insufficiency and she said- Like what?  I told her to just write about what she felt and what she had to do because of it.     “If

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Backpack Health App for AI

An app to help improve daily self-management of your health information, while contributing to research, and improving access to AIU support. Join the AIU Backpack Health Group now at: join.backpackhealth.com/aiu

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