Support for Those Living with Adrenal Insufficiency

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Five Challenges with Cushing’s Disease

Five Challenges with Cushing’s Disease       Challenges are unique to every individual, but when you stop to think about what a person with Cushing’s has to go through every day, you run into challenges you wouldn’t expect with a healthy person. Today I’ll talk about

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Would You Move?

Would You Move? Two years ago, I passed out during adrenal crisis. When I did, I was visiting my then long distance boyfriend on the opposite side of the state, the less populated side. We did figure out at that time that my living with him as

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Another Birthday, Another Year Sick

Another Birthday, Another Year Sick I turn 27 on Tuesday.  That is the age that my mom was when I was born.  I am now half her age.  By this time in her life, she had her dream job, a house, a husband, and a new baby.

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The Horrible, Hideous Monster

The Horrible, Hideous Monster By Tricia Godt Borchardt It attacked me. It gradually took over my body and changed my appearance and I thought there was nothing I could do about it. I thought it was normal. I thought I just needed to work harder on my

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Mother, Wife and Friend

I wanted to share my story so that it might help others get diagnosed: I had a pituitary Macroadenoma removed in 1997 because it was pressing on my optic nerve. Years later I was blessed to have my beautiful twins Alyssa and Anthony in 2002. During my pregnancy

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The Importance of Perception

The Importance of Perception Written by Amber  I recently read a study conducted in 1999 by The British Psychological Society. The full study can be found here, however I will provide a brief summary for those not overly excited by statistical analysis. The goal of this study was

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One of a Kind

One of a Kind Hello! My name is Karen, this is my son Nathaniel, aka Goober-Fish, or Nate, as he now calls himself. Nate who is almost 5, is the only known person in the USA with POMC.  He has a list of health issues and Adrenal Insufficiency or “A.I.” for

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Just an Average Kid

Written by Jennifer M. I asked Lily if she wanted to write something to help others learn about Adrenal Insufficiency and she said- Like what?  I told her to just write about what she felt and what she had to do because of it.     “If

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Emergency Protocols Saved My Daughter

Emergency Protocols Saved My Daughter by Laura Adderholt Anna was born with a rare genetic condition that causes her to be adrenal insufficient, she also has Skeletal Dysplasia and Perthes Disease of the right hip.  This bone disease causes the ball joint to die and she lives with

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The Beauty of Community

Reposted from the blog of Amber  “Living with Addison’s Disease“ I write about my life with Addison’s Disease yet until yesterday I had never met another person with the same disease. I communicate regularly online through things like this blog or online support groups, but to share

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Backpack Health App for AI

An app to help improve daily self-management of your health information, while contributing to research, and improving access to AIU support. Join the AIU Backpack Health Group now at: join.backpackhealth.com/aiu

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Recent News and Events

  • When Bloodwork isn't Just Bloodwork
    When Bloodwork isn’t Just Bloodwork
    January 28, 2019 by
    When Bloodwork isn’t Just Bloodwork Thank you to Amber for sharing this, visit her blog via the link above. Today, after one stick and lots of needle adjusting, a sweat and tear soaked 4 year old and her mama stepped out of the lab room and into a...
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  • What do you call a group of zebras?
    What do you call a group of zebras?
    December 28, 2018 by
    What do you call a group of zebras? No, I’m not joking—really, do you know what you call a group of zebras? I didn’t either until recently. Many of us are familiar with the use of the term “zebra” in the medical community to refer to an...
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