Support for Those Living with Adrenal Insufficiency

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We’re Partnering With The Mighty!

We’re thrilled to announce a new partnership that will bring our resources in front of The Mighty‘s wide-reaching readership. We will now have a growing home page on The Mighty and appear on many stories on the site. The Mighty is a story-based health community focused on

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Glucocorticoid tapering and adrenal suppression testing guide

INTRO We are pleased to publish our new Glucocorticoid Tapering and Adrenal Suppression Testing guide.   We created this guide to address the growing need for information on a misunderstood topic. Primary adrenal Isufficiency from autoimmune causes remains a rare condition the number of Secondary Adrenal Insufficient

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Volunteers Needed!

Volunteers Needed!

Have you been wondering how you can get involved and make a difference in your life and or the lives of those you love? We need volunteers! Adrenal Insufficiency United has Consolidated with the Adrenal Insufficiency Coalition and together we are working to develop committees to work

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AIU and AIC Consolidation

AIU and AIC Consolidation

Adrenal Insufficiency United is pleased to announce our consolidation with the Adrenal Insufficiency Coalition. Both organizations were started with the common vision of people working together to create change in an area that very much needs it. We believe that because of our common goals and different

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Why the Narrative needs to Change about Parenting Children with Special Needs

I have spent a lot of time reading a lot of blogs over the past few years regarding disability and disease. Much of that time I have spent also reading blogs about parenting children with special needs. The media and the over-running theme in many of these

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Learning to Live with a Monster

The Monster that Lives in our house is Green, Hairy and very, very angry. He is constantly asking for more and more of us, and no matter what we do to help alleviate his frustration and anger he continues to roar louder. Some days he flashes his

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Scarlett’s Story: Recovering from an Adrenal Crisis

Our beautiful daughter, Scarlett Adelaide was born on the 26th of October 2007. At about 72hrs old, the doctor at the hospital noticed and told us ‘uummm, I don’t know how to say this, but there’s something really wrong with your child’. After a week of tests, tears

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Adrenal Insufficiency Awareness Month

It’s April which means it’s adrenal insufficiency awareness month. Please help us raise awareness! Share this blog post with friends and family so they can help too. Visit your local EMS station, be sure to bring some cookies.  Open the file for some suggestions on what to

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Is Legislation Right for Me?

Part 1: IS LEGISLATION RIGHT FOR ME? Learn some helpful tips to help determine if working for protocols through legislation is the right choice for you. When you are thinking about legislation there are a few basic questions we want you to consider and answer for yourself.

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The Day an Adrenal Crisis nearly killed my Son

Three years ago this weekend, I woke up to a sterile room of beeping, bright lights, respirators going on and off, the slow hum of a machine that was keeping my son alive. There were several doctors in the room, nurses covered in gowns and masks, heating

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We have a problem.

250,000 Americans are diagnosed with adrenal insufficiency. 6,000,000 more are considered to be adrenal insufficient yet remain undiagnosed.

Recent News and Events

  • What Constitutes an Emergency
    What Constitutes an Emergency
    October 12, 2017 by
    by Sarah Reilley   Read more from her blog @ Spoons and Adrenals As we all know, adrenal crisis is a life or death situation.  Without immediate, proper care, there’s a very small window to correct the crisis before coma, brain damage, and death occur.  Not every emergency...
    Read more
  • Conference on Adrenal Insufficiency
    Conference on Adrenal Insufficiency
    October 1, 2017 by
    Registration for AIU’s first ever conference devoted to adrenal insufficiency is now open! We are thrilled to open registration for our March 23-25 conference held in Kansas City, MO.      With an amazing line up of professionals addressing a wide range of topics this conference is not to...
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