Support for Those Living with Adrenal Insufficiency

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How cupcakes helped make a new law.

How cupcakes helped make a new law.

A little over 21 years ago just after midnight my second daughter was born. During the night all I could do was look at her and think about how perfect she was. Later that morning, when our amazing pediatrician came to the hospital around 10 a.m. I

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Preventing death from adrenal insufficiency

Preventing death from adrenal insufficiency

By Lisa J. Markland Originally posted on FB in the Addison’s Disease Support Group. To respect privacy some names have been changed to initials. As the ADSG’s founder, along with the group’s admins, I’d like to let you all know of the very sad passing of several

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5 Ways to Manage Grief of Parenting a Child with Special Needs

Grieving is an inevitable part of parenting. All of our children were born their OWN person. Before their birth, all parents have dreams of what they see in their future with their kids. Most of us imagine the child growing up, having common experiences in adolescence, learning

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To The Husband who didn’t choose this….

To The Husband who didn’t choose this….

To The Husband who didn’t choose this…. Posted on August 12, 2015 by JMiddlebrooks I know this isn’t how you thought it would be. I know this isn’t how you envisioned our life together. When you married me, When we started all of this… I know you didn’t picture this

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The Top 5 Reasons being a Friend with a Special Needs Mom is Awesome

The Top 5 Reasons being a Friend with a Special Needs Mom is Awesome

Being a friend to a parent of a child with special needs is not an easy task. The lives of a parent of a child with special needs are fairly chaotic, unpredictable, slightly self serving, and messy. I am a parent to a sweet little boy, and

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Cortisol pump: Continuous Subcutaneous Hydrocortisone Infusion – a patient experience.

Cortisol pump Continuous Subcutaneous Hydrocortisone Infusion – a patient experience. by Desley Rolph The below information is purely my personal experience and thoughts, as a patient, relating to using Continuous Subcutaneous Hydrocortisone Infusion, for treatment of Adrenal Insufficiency, using an insulin pump. (It is not Medically researched

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Learn how you can help AIU in it’s mission to save lives.

  As the mom to a beautiful 21-year-old daughter with AI the work I do for AIU is out of my love for her and all of those I’ve met, both in person and online. The more I learn about AI and it’s impact on the people

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We’re Partnering With The Mighty!

We’re thrilled to announce a new partnership that will bring our resources in front of The Mighty‘s wide-reaching readership. We will now have a growing home page on The Mighty and appear on many stories on the site. The Mighty is a story-based health community focused on

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Glucocorticoid tapering and adrenal suppression testing guide

INTRO We are pleased to publish our new Glucocorticoid Tapering and Adrenal Suppression Testing guide.   We created this guide to address the growing need for information on a misunderstood topic. Primary adrenal Isufficiency from autoimmune causes remains a rare condition the number of Secondary Adrenal Insufficient

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Volunteers Needed!

Volunteers Needed!

Have you been wondering how you can get involved and make a difference in your life and or the lives of those you love? We need volunteers! Adrenal Insufficiency United has Consolidated with the Adrenal Insufficiency Coalition and together we are working to develop committees to work

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Backpack Health App for AI

An app to help improve daily self-management of your health information, while contributing to research, and improving access to AIU support. Join the AIU Backpack Health Group now at: join.backpackhealth.com/aiu

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Recent News and Events

  • When Bloodwork isn't Just Bloodwork
    When Bloodwork isn’t Just Bloodwork
    January 28, 2019 by
    When Bloodwork isn’t Just Bloodwork Thank you to Amber for sharing this, visit her blog via the link above. Today, after one stick and lots of needle adjusting, a sweat and tear soaked 4 year old and her mama stepped out of the lab room and into a...
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  • What do you call a group of zebras?
    What do you call a group of zebras?
    December 28, 2018 by
    What do you call a group of zebras? No, I’m not joking—really, do you know what you call a group of zebras? I didn’t either until recently. Many of us are familiar with the use of the term “zebra” in the medical community to refer to an...
    Read more
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