by Sarah Reilley Read more from her blog @ Spoons and Adrenals As we all know, adrenal crisis is a life or death situation. Without immediate, proper care, there’s a very small window to correct the crisis before coma, brain damage, and death occur. Not every emergency
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Registration for AIU’s first ever conference devoted to adrenal insufficiency is now open! We are thrilled to open registration for our March 23-25 conference held in Kansas City, MO. With an amazing line up of professionals addressing a wide range of topics this conference is not to
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Advice from a Volunteer Firefighter with Adrenal Insufficiency My name is Jeannie, and I have been diagnosed with Secondary AI since March of 2015. To make a long story short, I was diagnosed with a pituitary adenoma in Feb of 2015. It was apron 8mm x 10mm
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A little over 21 years ago just after midnight my second daughter was born. During the night all I could do was look at her and think about how perfect she was. Later that morning, when our amazing pediatrician came to the hospital around 10 a.m. I
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By Lisa J. Markland Originally posted on FB in the Addison’s Disease Support Group. To respect privacy some names have been changed to initials. As the ADSG’s founder, along with the group’s admins, I’d like to let you all know of the very sad passing of several
Read more →Grieving is an inevitable part of parenting. All of our children were born their OWN person. Before their birth, all parents have dreams of what they see in their future with their kids. Most of us imagine the child growing up, having common experiences in adolescence, learning
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To The Husband who didn’t choose this…. Posted on August 12, 2015 by JMiddlebrooks I know this isn’t how you thought it would be. I know this isn’t how you envisioned our life together. When you married me, When we started all of this… I know you didn’t picture this
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Being a friend to a parent of a child with special needs is not an easy task. The lives of a parent of a child with special needs are fairly chaotic, unpredictable, slightly self serving, and messy. I am a parent to a sweet little boy, and
Read more →Cortisol pump Continuous Subcutaneous Hydrocortisone Infusion – a patient experience. by Desley Rolph The below information is purely my personal experience and thoughts, as a patient, relating to using Continuous Subcutaneous Hydrocortisone Infusion, for treatment of Adrenal Insufficiency, using an insulin pump. (It is not Medically researched
Read more →As the mom to a beautiful 21-year-old daughter with AI the work I do for AIU is out of my love for her and all of those I’ve met, both in person and online. The more I learn about AI and it’s impact on the people
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