We’re excited to announce two additions to our Board of Directors. Randy Fishburn and Blake Heflin joined our team in April. Each has their own unique perspective on living with AI, and how that can translate into helping others facing the same challenges. We already have new programs in the works, and we look forward to sharing them with you! Read bios on Randy, Blake, and the rest of our team here.
With growth come new opportunities. We are forming committees to work on specific topics. These committees will suggest and create policies, programs, and tools, in their respective areas for AIU. If you have a passion for helping the AI community, joining a committee is a great way to get involved. The following committees are accepting volunteers. Sign up for the committee of your choice here.
Conference Committee – chair Randy Fishburn
Research Committee chair – Maria Stewart
Legislation chair Kirsten – Norgaard
Social Media & Website Committee – chair Jennifer Knapp
Fundraising/Grant Committee – chair Monica Unseld
Collaboration Committee – chair Gail McArthur
School Resources – chair Kirby Rivas
Teens/Young Adults – chairs Blake Heflin & Shannon Taylor
A new members only page will be coming to our website soon. There you will find videos of our conference sessions, a list of physicians recommended by other members and more. Memberships start at $24 per year and renew each April. Join here
Conferences and events have the power to magnify our efforts. Through new information and networking, AIU can keep informed of the latest developments and make lasting connections. Read about our March 2018 conference in Kansas City Missouri here. Plans are already underway for the next conference. Once dates and a venue have been selected we will announce it to our community.
We are pleased to have representatives from our AIU Board attending the Global Genes RARE Advocacy Summit, October 3-4th 2018, in Irvine California, and the NORD Rare Diseases and Orphan Products Breakthrough Summit, October 15-16th 2018, in Washington DC. These conferences are an investment in the future for our community. We are grateful for the support of Global Genes, NORD, and many others who make it possible for us to participate in these events.