Support for Those Living with Adrenal Insufficiency

Yearly archive for 2016

Cortisol pump: Continuous Subcutaneous Hydrocortisone Infusion – a patient experience.

Cortisol pump

Continuous Subcutaneous Hydrocortisone Infusion – a patient experience.

by Desley Rolph

The below information is purely my personal experience and thoughts, as a patient, relating to using Continuous Subcutaneous Hydrocortisone Infusion, for treatment of Adrenal Insufficiency, using an …

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Learn how you can help AIU in it’s mission to save lives.

 

As the mom to a beautiful 21-year-old daughter with AI the work I do for AIU is out of my love for her and all of those I’ve met, both in person and online. The more I learn about …

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We’re Partnering With The Mighty!

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We’re thrilled to announce a new partnership that will bring our resources in front of The Mighty‘s wide-reaching readership. We will now have a growing home page on The Mighty and appear on many stories on the site.

The …

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Glucocorticoid tapering and adrenal suppression testing guide

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We are pleased to publish our new Glucocorticoid Tapering and Adrenal Suppression Testing guide.
 
We created this guide to address the growing need for information on a misunderstood topic. Primary adrenal Isufficiency from autoimmune causes remains a rare condition
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Volunteers Needed!

Volunteers Needed!

VolunteerHave you been wondering how you can get involved and make a difference in your life and or the lives of those you love? We need volunteers!

Adrenal Insufficiency United has Consolidated with the Adrenal Insufficiency Coalition and together we …

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Why the Narrative needs to Change about Parenting Children with Special Needs

I have spent a lot of time reading a lot of blogs over the past few years regarding disability and disease. Much of that time I have spent also reading blogs about parenting children with special needs. The media and …

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Learning to Live with a Monster

13233054_1695199810755728_6588655385553560081_nThe Monster that Lives in our house is Green, Hairy and very, very angry. He is constantly asking for more and more of us, and no matter what we do to help alleviate his frustration and anger he continues to …

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Scarlett’s Story: Recovering from an Adrenal Crisis

1120Our beautiful daughter, Scarlett Adelaide was born on the 26th of October 2007. At about 72hrs old, the doctor at the hospital noticed and told us ‘uummm, I don’t know how to say this, but there’s something really wrong …

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Adrenal Insufficiency Awareness Month

It’s April which means it’s adrenal insufficiency awareness month.
Please help us raise awareness!

Share this blog post with friends and family so they can help too.

Visit your local EMS station, be sure to bring some cookies.  Open the …

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Is Legislation Right for Me?

Part 1: IS LEGISLATION RIGHT FOR ME?

Learn some helpful tips to help determine if working for protocols through legislation is the right choice for you.

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When you are thinking about legislation there are a few basic questions we want
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