Support for Those Living with Adrenal Insufficiency

Monthly archive for November 2015

Addie’s Adrenal Crisis

Addie’s Adrenal Crisis

addieMy 5 year old daughter Addie has been adrenal insufficient since birth.

Not long ago Addie had been playing all day acting fine, then that evening about 6:00 p.m. she started to complain of a small bellyache.…

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Growing up with Adrenal Insufficiency

Growing up with Adrenal Insufficiency 

Alyssa_Leight_headshotI was diagnosed with adrenal insufficiency, when I was seven years old. All I remember about that time is going to the doctor a lot and having to get my blood drawn, which like any …

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Five Challenges with Cushing’s Disease

Five Challenges with Cushing’s Disease

 

 

 

Challenges are unique to every individual, but when you stop to think about what a person with Cushing’s has to go through every day, you run into challenges you wouldn’t expect with …

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Would You Move?

Would You Move?

Stephanie_MarshTwo years ago, I passed out during adrenal crisis. When I did, I was visiting my then long distance boyfriend on the opposite side of the state, the less populated side. We did figure out at that …

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Another Birthday, Another Year Sick

Another Birthday, Another Year Sick

DanielleI turn 27 on Tuesday.  That is the age that my mom was when I was born.  I am now half her age.  By this time in her life, she had her dream job, a …

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The Horrible, Hideous Monster

The Horrible, Hideous Monster

By Tricia Godt Borchardt

Tricia092012It attacked me. It gradually took over my body and changed my appearance and I thought there was nothing I could do about it. I thought it was normal. I thought I …

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Mother, Wife and Friend

I wanted to share my story so that it might help others get diagnosed:

tracy_ZI had a pituitary Macroadenoma removed in 1997 because it was pressing on my optic nerve. Years later I was blessed to have my beautiful twins …

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The Importance of Perception

The Importance of Perception

I recently read a study conducted in 1999 by The British Psychological Society. The full study can be found here, however I will provide a brief summary for those not overly excited

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One of a Kind

One of a Kind

Hello! My name is Karen, this is my son Nathaniel, aka Goober-Fish, or Nate, as he now calls himself.

naterhatNate who is almost 5, is the only known person in the USA with POMC.  He has …

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Just an Average Kid

Written by Jennifer M.

I asked Lily if she wanted to write something to help others learn about Adrenal Insufficiency and she said- Like what?  I told her to just write about what she felt and what she had to …

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