Support for Those Living with Adrenal Insufficiency

Monthly archive for November 2015

Inject At Home First!  Cullen’s Story

Inject At Home First! Cullen’s Story I want to preface this story with the fact that the hospital we take him to has cared for him during every single crisis he has had.  He was transported there at birth and transported again 2 weeks later for his second crash.

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Suffering For Far Too Long

Originally posted in “Our Adrenal Crisis Stories” Anonymous The day after a close friend passed away, on January 9th 2010, I became ill with a fever of 102.8.  I called my doctor’s office to set up an appointment and the nurse told me to wait a few

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Importance Of The Link Between Adrenal Failure And Adrenoleukodystrophy (ALD)

This was orignially written for the Society for Endocrinology Monthly Newsletter by the www.aldlife.org .  ALD Life has given us permission to use it here in our blog. Importance of the link between Adrenal Failure and Adrenoleukodystrophy (ALD) In 2001, Alex and Ayden Hunt, from East Dulwich, were diagnosed with Adrenoleukodystrophy (ALD).

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The Rights of Students with Disabilities

The Rights of Students with Disabilities Although Adrenal Insufficiency is life threatening, our kids look just like everyone else’s kids and school personnel may not understand the dangers they face.  This makes Adrenal Insufficiency(AI) a Hidden Disability.  Luckily there are Federal Laws and Regulations that protect children

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It’s Your Life Be In It

DAY TWENTY-FOUR, CUSHING’S AWARENESS CHALLENGE   Originally written and posted on April 24, 2012 by MaryO · Comments (0)Filed under: Cushing’s Awareness Challenge 2012, Cushings Visit Cushing’s Help for more information about Cushing’s Disease       I first saw a similar image to this one with the saying Life. Be in

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Did the Tears Pour Because My Cortisol was Low?

Did the Tears Pour Because My Cortisol was Low? My last blog was HypoGal LOL about Doctors and Steroid Treatments The tears had poured down for a couple of days before my last mini adrenal crisis. The down pour of tears should have been my warning signal. But, even after

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Landon the Brave

Landon the Brave My name is Lora Joy Adzima. I am the mother of two boys, Avery -14 and Landon-12. My youngest, Landon had been sick since he was born. He had feeding problems, failure to thrive, Reactive Airway Disease, severe allergies that caused him to have

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Awakening From Our Bad Dream, Safely

Have you ever had a dream where a bad entity or something was chasing you? Written by: Me and Mine Clearly you were in eminent danger. But try as you might, you cannot run. You cannot move or maybe your movement is so delayed that it’s just the

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Abram Iman: Gift of Peace & Good Will

Abram Iman: Gift of Peace & Good Will On Dec. 17th, 2011, Abram Iman celebrated his 10th birthday by making gifts for seriously ill children. These weren’t just any gifts, but carefully crafted, heartfelt gifts that Abram says – “just made me happy.” The shy, soft-spoken boy

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Adrenal Insufficiency United and First Responders: Creating Awareness to Save Lives

Adrenal Insufficiency United and First Responders: Creating Awareness to Save Lives AIU attended the EMS Conference in Denver, CO back in May of 2012. Fire Rescue International attendees heard us call out…..”Can we share some information that could save a life?” Of all the opening lines, this one

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We have a problem.

250,000 Americans are diagnosed with adrenal insufficiency. 6,000,000 more are considered to be adrenal insufficient yet remain undiagnosed.

Recent News and Events

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    Yes you need a medical alert bracelet!
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    A little over 21 years ago just after midnight my second daughter was born. During the night all I could do was look at her and think about how perfect she was. Later that morning, when our amazing pediatrician came to the hospital around 10 a.m. I...
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