Support for Those Living with Adrenal Insufficiency

Archive for the Medical Category

Cortisol pump: Continuous Subcutaneous Hydrocortisone Infusion – a patient experience.

Cortisol pump Continuous Subcutaneous Hydrocortisone Infusion – a patient experience. by Desley Rolph The below information is purely my personal experience and thoughts, as a patient, relating to using Continuous Subcutaneous Hydrocortisone Infusion, for treatment of Adrenal Insufficiency, using an insulin pump. (It is not Medically researched

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Glucocorticoid tapering and adrenal suppression testing guide

INTRO We are pleased to publish our new Glucocorticoid Tapering and Adrenal Suppression Testing guide.   We created this guide to address the growing need for information on a misunderstood topic. Primary adrenal Isufficiency from autoimmune causes remains a rare condition the number of Secondary Adrenal Insufficient

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AIU and AIC Consolidation

AIU and AIC Consolidation

Adrenal Insufficiency United is pleased to announce our consolidation with the Adrenal Insufficiency Coalition. Both organizations were started with the common vision of people working together to create change in an area that very much needs it. We believe that because of our common goals and different

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The Rights of Students with Disabilities

The Rights of Students with Disabilities Although Adrenal Insufficiency is life threatening, our kids look just like everyone else’s kids and school personnel may not understand the dangers they face.  This makes Adrenal Insufficiency(AI) a Hidden Disability.  Luckily there are Federal Laws and Regulations that protect children

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Landon the Brave

Landon the Brave My name is Lora Joy Adzima. I am the mother of two boys, Avery -14 and Landon-12. My youngest, Landon had been sick since he was born. He had feeding problems, failure to thrive, Reactive Airway Disease, severe allergies that caused him to have

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Awakening From Our Bad Dream, Safely

Have you ever had a dream where a bad entity or something was chasing you? Written by: Me and Mine Clearly you were in eminent danger. But try as you might, you cannot run. You cannot move or maybe your movement is so delayed that it’s just the

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The Horrible, Hideous Monster

The Horrible, Hideous Monster By Tricia Godt Borchardt It attacked me. It gradually took over my body and changed my appearance and I thought there was nothing I could do about it. I thought it was normal. I thought I just needed to work harder on my

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The Journey We Never Saw Coming

This post was first featured on Baby’s First Test, visit their website for more information about newborn screening. Posted: April 15, 2013 at 5:35pm by Allie Kelly Kohen looking as cute as ever thanks to newborn screening! On April 22, 2012, I gave birth to my sweet

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Signs and Symptoms Survey Results

Study Participants Adrenal Insufficiency United (AIU) conducted a study to compare the symptoms and life experiences of those affected with Adrenal Insufficiency (AI) to with those without AI.  Data was collected using Survey Monkey.  Participants were found, in both the control and affected group, through Facebook. The

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Gabe’s Birthday in the Hospital

By Cheryl Kornegay Gabriel had never had a real birthday party before. For the past nine years, we had small gatherings with grandparents, aunts, and uncles, but had just never managed to have a big party with all of his friends. This year was special. This year

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250,000 Americans are diagnosed with adrenal insufficiency. 6,000,000 more are considered to be adrenal insufficient yet remain undiagnosed.

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