Support for Those Living with Adrenal Insufficiency

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Another Birthday, Another Year Sick

Another Birthday, Another Year Sick I turn 27 on Tuesday.  That is the age that my mom was when I was born.  I am now half her age.  By this time in her life, she had her dream job, a house, a husband, and a new baby.

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The Horrible, Hideous Monster

The Horrible, Hideous Monster By Tricia Godt Borchardt It attacked me. It gradually took over my body and changed my appearance and I thought there was nothing I could do about it. I thought it was normal. I thought I just needed to work harder on my

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Mother, Wife and Friend

I wanted to share my story so that it might help others get diagnosed: I had a pituitary Macroadenoma removed in 1997 because it was pressing on my optic nerve. Years later I was blessed to have my beautiful twins Alyssa and Anthony in 2002. During my pregnancy

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The Importance of Perception

The Importance of Perception Written by Amber  I recently read a study conducted in 1999 by The British Psychological Society. The full study can be found here, however I will provide a brief summary for those not overly excited by statistical analysis. The goal of this study was

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One of a Kind

One of a Kind Hello! My name is Karen, this is my son Nathaniel, aka Goober-Fish, or Nate, as he now calls himself. Nate who is almost 5, is the only known person in the USA with POMC.  He has a list of health issues and Adrenal Insufficiency or “A.I.” for

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Just an Average Kid

Written by Jennifer M. I asked Lily if she wanted to write something to help others learn about Adrenal Insufficiency and she said- Like what?  I told her to just write about what she felt and what she had to do because of it.     “If

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Emergency Protocols Saved My Daughter

Emergency Protocols Saved My Daughter by Laura Adderholt Anna was born with a rare genetic condition that causes her to be adrenal insufficient, she also has Skeletal Dysplasia and Perthes Disease of the right hip.  This bone disease causes the ball joint to die and she lives with

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The Beauty of Community

Reposted from the blog of Amber  “Living with Addison’s Disease“ I write about my life with Addison’s Disease yet until yesterday I had never met another person with the same disease. I communicate regularly online through things like this blog or online support groups, but to share

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The Journey We Never Saw Coming

This post was first featured on Baby’s First Test, visit their website for more information about newborn screening. Posted: April 15, 2013 at 5:35pm by Allie Kelly Kohen looking as cute as ever thanks to newborn screening! On April 22, 2012, I gave birth to my sweet

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Get Here Now, She’s Dying!

Written by Jenny W. On a Sunday morning in May 2007 my husband and I went to check on our 18 month old daughter. We were surprised that she had not come into our room to snuggle like she had done every Sunday before. When we walked

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We have a problem.

250,000 Americans are diagnosed with adrenal insufficiency. 6,000,000 more are considered to be adrenal insufficient yet remain undiagnosed.

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