Support for Those Living with Adrenal Insufficiency

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The Top 5 Reasons being a Friend with a Special Needs Mom is Awesome

Being a friend to a parent of a child with special needs is not an easy task. The lives of a parent of a child with special needs are fairly chaotic, unpredictable, slightly self serving, and messy. I am a parent to a sweet little boy, and

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Cortisol pump: Continuous Subcutaneous Hydrocortisone Infusion – a patient experience.

Cortisol pump Continuous Subcutaneous Hydrocortisone Infusion – a patient experience. by Desley Rolph The below information is purely my personal experience and thoughts, as a patient, relating to using Continuous Subcutaneous Hydrocortisone Infusion, for treatment of Adrenal Insufficiency, using an insulin pump. (It is not Medically researched

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Learn how you can help AIU in it’s mission to save lives.

  As the mom to a beautiful 21-year-old daughter with AI the work I do for AIU is out of my love for her and all of those I’ve met, both in person and online. The more I learn about AI and it’s impact on the people

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We’re Partnering With The Mighty!

We’re thrilled to announce a new partnership that will bring our resources in front of The Mighty‘s wide-reaching readership. We will now have a growing home page on The Mighty and appear on many stories on the site. The Mighty is a story-based health community focused on

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Glucocorticoid tapering and adrenal suppression testing guide

INTRO We are pleased to publish our new Glucocorticoid Tapering and Adrenal Suppression Testing guide.   We created this guide to address the growing need for information on a misunderstood topic. Primary adrenal Isufficiency from autoimmune causes remains a rare condition the number of Secondary Adrenal Insufficient

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Volunteers Needed!

Volunteers Needed!

Have you been wondering how you can get involved and make a difference in your life and or the lives of those you love? We need volunteers! Adrenal Insufficiency United has Consolidated with the Adrenal Insufficiency Coalition and together we are working to develop committees to work

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AIU and AIC Consolidation

AIU and AIC Consolidation

Adrenal Insufficiency United is pleased to announce our consolidation with the Adrenal Insufficiency Coalition. Both organizations were started with the common vision of people working together to create change in an area that very much needs it. We believe that because of our common goals and different

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Why the Narrative needs to Change about Parenting Children with Special Needs

I have spent a lot of time reading a lot of blogs over the past few years regarding disability and disease. Much of that time I have spent also reading blogs about parenting children with special needs. The media and the over-running theme in many of these

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Learning to Live with a Monster

The Monster that Lives in our house is Green, Hairy and very, very angry. He is constantly asking for more and more of us, and no matter what we do to help alleviate his frustration and anger he continues to roar louder. Some days he flashes his

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Scarlett’s Story: Recovering from an Adrenal Crisis

Our beautiful daughter, Scarlett Adelaide was born on the 26th of October 2007. At about 72hrs old, the doctor at the hospital noticed and told us ‘uummm, I don’t know how to say this, but there’s something really wrong with your child’. After a week of tests, tears

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250,000 Americans are diagnosed with adrenal insufficiency. 6,000,000 more are considered to be adrenal insufficient yet remain undiagnosed.

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